Sunday, May 19, 2013

Gluttened At Work and A Time Line of Pain




It has been a while since I could say, "I am pretty sure I got gluttened."


In March, I had one of those rare times. 


And I am positive I got gluttened.


I started a new job. I have been eating only my own food. 
 


So how exactly did I get gluttened?
 
 
 

All I can come up with is that I was in an unfamiliar environment where gluten is literally everywhere and I was not cleaning up after it as I do in my own home, nor was I keeping track of it. At home I am like a hound dog when it comes to gluten. I am a bit of a freak about it. I will admit it, but it has worked well for me...being a freak about keeping it in check.



Nothing at home had changed.



The only change was my recent environment.


How Did It Happen?

 
I have narrowed it down to 2 scenarios. 
 
1.) Either I got gluttened by touching the microwave and then eating my grapes.
or
2.) I got gluttened by using the soap and hand sanitizers in our office and then eating my grapes.

 

What Have I learned? 


 
1.)  I only wash my hands with my own personal soap. I even have small sizes to put in my pocket now for when I am walking around.  My career and my illness now require me to wash my hands frequently. 
 
2.)  I never use the facility hand sanitizers scattered throughout the building.
 
3.)  I always use a paper towel to turn off the sink.
 
4.)  I always use a paper towel to open the microwave and to push the setting buttons.
 
5.)  I always have a lid on my meal to be microwaved.
 
6.)  And if needed I wash my hands again prior to eating if I messed up on any of 3-5.

7.)  And I rarely every touch my food with anything but my wrapped fork or spoon from home.
 
 
 
 

Below is a play by play of how my Gluttened 2 weeks played out.

 

Day 1:



It was Wednesday.  I was on day 3 of my new job.  I had brought in my lunch all 3 days. Wednesday's lunch consisted of frozen kale, navy bean and ham soup.  We had made it a few weeks earlier and I had frozen some for just this type of day.  I also had brought a snack of grapes.
 
 
I washed my hands and then I heated up the soup in the office microwave. The soup was taken out and I brought it to my groups office.  While I waited for the soup to cool down a little I ate my grapes.
 

Shortly after I had eaten my stomach began cramping.  Not just a little, but quite significantly.  I was having a hard time concentrating, was feeling clammy and could feel that jittery "I can't focus on much now feeling" in my eyes.
 
 
I was thinking, great, it is my first week of work. I look normal, I have presented myself as normal, and right now at noon on Day 3, I am feeling anything at all but normal.
 
I sat through a group meeting.  All the while I was thinking ~ I am really in need of going home.
 
 
Somehow I mustered through. No one could tell that I was grimacing. I've apparently gotten good at hiding my grimace face.
 

I made a trip to the bathroom.  Something most women don't care to ever do when at work. At this moment I didn't care at all.  I was dying.
 

I took some Motrin and I made it through a few more meetings before I finally felt comfortable enough to say ~ "I'm out of here...I'm Not feeling well and all my work has been done."
 
 
 
It's funny  ~ not funny how when around people not in the know ~ you  can put on a fake face.  It's the "Face of An Invisible Disease".  And once I got to the car, all "fake faces" were off.  I was dying.  I was having a hard time focusing. I was having a hard time driving. All I wanted to do was to crawl into bed and die. 
 
Interestingly enough I have finally found a place and reason to use my Lamaze breathing and focusing on something which Is The Pain. 

 
I want to be One With My Gut Pain and for everyone to leave me alone when I experience this. 
 
 
 

I checked in with kiddo No. 1 and told her I was on my way home and that I would be crawling into bed as soon as I pulled into the garage.  Mama's stomach was not good! She understood.
 
 
 
Kiddo No. 2 was not privy to my state of tummy since he was still at school. He sometimes texts me though inbetween classes or at the end of the day. 
 
 
This was one of those days .... he decided to text me as I lay dying in bed. 
 
 
"I need to stay after school today to make up a Spanish Test". 
 
 
 
Luckily I was alive enough to respond back with ... "Great!  Of course you do!" 
 
 

Yes, I had made it through a few hours of dying at work, but I was not wanting to drive 5 minutes down the road to pick up the high schooler.  I really wanted to just continue dying in bed for the rest of the evening. 
 
 
 
Funny, or not, he must have been reading my mind ..... or my sarcasm, as his next text said, "Never mind.  I am on the bus."
 
 
 
Really??   Yes, thankfully I did not have to crawl back into my car.  It was just a test. Can we pull your leg a little more today?
 
 
 
The cramping eventually stopped ~ i.e. bathroom visits and exhaustion kicked in big time. 
 
 
I was either in bed or the bathroom from the second I walked in the door that afternoon til the following morning.
 
 

Day 2 went as follows:

 
I got up and went to work.
My stomach was sore, but no longer cramping.
I had a headache from sun up to sun down.


Day 3: 


I got up and went to work.
I had a headache from sun up to sun down. 
I had significant difficulty focusing on the computer screen.
Thanful that I don't have to sit in front of a computer all day.
I took lots of Motrin and drank a lot of water.
 

Day 4:


The weekend 


My headache persisted and muscle fatigue set in. My arms and legs feel somewhat "jello like" when this occurs.  I feel hypoglycemic.  Interestingly enough I have felt that feeling on and off for years.  Since gluten free never unless I come in contact with gluten.

Lower back pain was just beginning to rear it's ugly head as well.  It only took half a day to get going. I could barely stand upright and shuffled around when I needed to go somewhere.  
 
Heat wraps became my friend for the week.

Emotions kicked in and I was just a bit over the edge touchy and grouchy.  Ok, I'm trying to be easy on myself. I really was over the top Grouchy.  I spent most of the day by myself and I was thankful for this as I would not have been very nice to my family.  Smiling was not on the agenda.
 
 

Day 5: 


My headache was finally gone.

My muscle fatigue was not as significant, but was still  present in the am.

Backache in full force and I was thankful it was the weekend. Working like this would have been seriously doubtful.

Oscar the Grouch was here for Spring Break.

Day 6:


I was still dealing with lower back pain, but I went back to work and shuffled and attempted to stand as upright as I could.
 
Looking normal was my goal for the day.  Not sure I pulled it off completely, but I sure did make an effort.
 

The following week:

My backache persisted for the rest of the week. I used ThermaCare heat wraps for the week and 800 mg of Motrin at a time to deal with the inflammation and the pain. This was recommended by an old friend who is a physical therapist.
 

Grouchiness lessened day by day.
 
My ability to focus on the computer screen, paperwork, and anything else continued to lessen a little day by day.
 
 
I was amazed that I had allowed this to happen after more than 2 years gluten free.  But it is evidence of how vigilant we need to be every second of the day to keep ourselves truly gluten free.  We always have to be on. 
 
 
 
 

Gluten Free Is For My Health.  It Is Not A Diet.  It Is Not A Fad. It Is My Life Every Second Of The Day.  It Is My World.

 
 
 
 
 
 
 

Saturday, May 18, 2013

Disney: Victory for Gluten Free And Another Wake Up On Ignorance

Yesterday I came home to see that my Gluten Free Community had been rallying against The Disney Channel and the "Jessie" Premier that was set to air Friday, May 18, 2013. 
 
I am always so proud to see my online community come together. We are active online for many reasons:  to connect, to learn and to educate.  We have all experienced bullying in one form or another due to our need to be gluten free.  As an adult I never truly thought I would experience being bullied, but like so many others I have experienced it in some fashion as an adult.  It makes all of us dealing with this as an adult hyper aware of what children with food allergies or celiac disease must go through. It makes us hyper vigilant to stand up for these children so they do not experience this and it makes us hyper vigilant to educate our immediate communities, our online communities and the world that having a food allergy, gluten intolerance and/or celiac disease is no joke.  And now that Disney has pulled the show and the Jessie community is reacting negatively to this, it gives all of us in the Gluten Community even more of a reason to continue rallying and putting a stop to how the media portrays food allergies and celiac disease.  Many in the community get it, but it is the ones that do not on every level that make us keep up the fight.
 
 
 
 
 
The Jessie Premier was viewed on YouTube by some in our Gluten Free Community and word spread fast that there were multiple scenes where one of the main characters, Stewart, is picked on for being gluten free and not only by the kids, but by the adults as well.  One of the children on the show throws pancakes at his face after she is annoyed by him, and there is much laughter and a big smile on the "throwers" face.  After Stewart whines and cries "Ekkk Gluten!", the other boy in the scene states, "Wow, he makes me seem Macho".  More laughter follows.
 
 
If Disney were to do it right, they would soon follow with Stewart becoming very sick, diarrhea to follow for days with doubled over cramps, brain fog, moodiness, joint pain, school work being affected, behavior awful .. etc. etc.  And hopefully the cast would then feel like a bunch of buffoons (I'm being rather nice here).  But then this would not a comedy make.  It is not funny. No audience laughter would follow.
 

Throwing gluten on anyone with an intolerance or allergy and especially a child is in no way funny.  Read what happens to those of us that have to deal with it


It only takes 1/64th of a teaspoon of gluten to cause intestinal damage to a celiac.  And I wish it was just an intestinal response.
 
 
 
 
If you have not seen the Jessie clip that was pulled, please check it out here on GlutenDude.com  
 
The Gluten Free Community rallied together,blogged, shared information about it on Facebook and tweeted.  Disney listened.

 

Disney made the following statement on their Facebook page:

 
To our viewers, we received your feedback about tonight’s “Jessie” episode which some of you accessed early on Video-on-Demand. We are removing this particular episode from our regular programming schedule and will re-evaluate its references to gluten restrictions in the character’s diet. Please accept our apologies for the upset this episode caused you and your family. We value your feedback and thank you for watching Disney Channel.




Thank you Disney. You handled this well, listened to your heart and your mind and did what should have been done.

 Update:  It is still available on Demand.  Disney thanks, but no thanks. 

 

And then this soon followed:

Followers of Jessie commented on Disney's Facebook Page


As of this morning there are 493 comments and I am just disgusted with the parents/adults and then the children's comments. 

Here are a few:

People are so sensitive.

My 11yr old is very upset, & is asking why the Koala episode is not on. I think the complaints about a diet on an episode, is simply ignorant, when there are worse things on television that kids watch, or video games for that matter. We looked forward to watching the Koala episode tonight with our daughter, and had to explain why the episode was not on, and she doesn't seem understand it, and neither do we. Thanks to the parents that complained to Disney, how ignorant can you be to complain about something like this. Seriously, over a gluten diet that a character has on a tv show.

Who cares about gluten.

Wow! I get that you are respecting people's views; however, people need to not be so sensitive.

I totally get removing the Shake it Up episode w/ the model that says "I don't eat" but GLUTEN? REALLY?!

Seriously? Gluten? People need to get lives and find something a little more worthwhile to complain about. My little one was looking forward to this episode.

Hi, I'm a parent, and I blame Disney for every issue my kids have! It's not because I'm a pushover mom that let's my kids run the house! Nope, I'm a STELLAR parent!
Jesus parents, are you really going to blame the network?

Was this a last minute decision? Because you have been advertising every commercial break about the NEW Jessie. Realize you have MANY more kids wanting to watch this new episode than those that are sensitive because of a comment about gluten diets. So disappointed!



Uh, yeah, hi. I have seasonal allergies, and I want this episode of Phineas and Ferb banned because I can't "smell the roses," like one of the fictional characters said.

Pathetic. PATHETIC! Get over it, people. Grow a pair and learn how to laugh.



Okay, I've seen the clip. It's literally a kid getting a mini pancake thrown at him and saying "EEK GLUTEN!" and Ravi saying "Wow, even he makes me look macho."

Like seriously? Build a bridge and get over it. The kid was being a creeper to Zuri so she threw food at him. End of.



I am sorry the glu-tards were offended! It is so common now, what's the big deal?



This is the stupidest reason ever. if it even qualifies as one. & people saying "bring back old disney" leave because you're irrelevant. All the kid said was that he couldn't eat gluten or cheese. I mean, making fun of eating disorders like they did in shake it up, I understand, BUT A KID SAYING HE CAN'T EAT GLUTEN? COME ON. & Disney, if you were oh so worried in the first place, you MOVED the original airdate because of a movie and now you're moving this one? you had ALL that time to revise. & honestly, he just said what he couldn't eat! he had a food allergy! for the love of god, parents need to to stop taking everything so seriously!!!!


Thankfully many in our gluten free community stepped up to bat and put the not so informed or knowledgeable in their place. 



 
The Jessie Show was renewed in March of 2013.  I understand how excited people and kids get when their show premier comes back on. I hated all the months of waiting for Lost to come back every season. It was torture.  I get that....  But when a show tries to be trendy by showing "food allergy/intolerance bullying to be funny and ok" well, I no longer give a damn how irritated one might be about their show not coming back on for the moment. 





Disney does such a great job of handling food allergies in their parks and should have known better. 
 


 
A message to Disney: 

Please, please be an advocate on Television as you are in your Walt Disney World parks.  Stop the bullying and help us educate.  It's ashame you demonstrate one thing in your parks, in person, but a totally other thing while on TV.


As for the Viewers of Jessie:


Disney is the one that you should be irritated with ....and yourselves. 


 
I am amazed and disgusted that people are still so uneducated about food allergies and intolerances and with celiac disease. Parents and children making fun of food allergies and thinking it is just a show and no big deal are a horrendous problem in this world. It is not ok to portray a food allergy or intolerance as a joke. It is no joke. It is a matter of life or death for most of us ... For some it may be immediate and for others a painful walk through hell. 


Why am I so strict on my diet? Because I have to be.


Educate your kids. Whether it is about a child in your school with a peanut allergy or one that is gluten intolerant. Educate your kids and educate yourself.
 

And be very, very thankful if you do not have a food allergy or intolerance. It takes a lot of energy to be on guard every day and every second of your life.



It is no joke. No audience laughter is heard.

 







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